Patient and Caregiver Needs Assessment

Thank you to the more than 140 patients, caregivers and healthcare professionals who responded to the CPPENA Needs Assessment that was circulated from June to August 15th. We are extremely pleased with this response rate and with the valuable input that was received. This input will guide future activities of CPPENA, including the program for our upcoming Patient Conference (October 7th, 2021), future webinars, and new resources and networking opportunities that we heard will be valuable for the CPPENA network. 

View/Download Needs Assessment Results Summary